Saturday, November 1, 2014

Needing Answers

And soon... please! 

It's heartbreaking to see our little girl in pain and not understanding why she is hurting.  We can't tell her why her head hurts, and why she feels sick all the time.  We can't tell her it's going to get better, we simply don't know what tomorrow is going to bring.

We can, however, enjoy the times she is happy and bubbly and downright cheeky.  We can enjoy her laughter, her smile and her gorgeous pixie voice.  

We've had another rough 12 hours with Aerynn waking at 12.45am with disorientation, lots of scared tears, glazed over look on her face, non-responsive to questions, full body tremors which slowly eased to just hand and feet tremors by 1am, when she fell into a deep deep sleep and was not stirring even when being picked up and moved.  She slept 9 hours straight...  woke, bright as a button... only to be sleepy within the hour and needing 3 naps during the day.  No headaches and no remembering what happened during the night. 

We don't know what is happening.  

We are worried, but trying not to worry at the same time.  

We can increase her medication for migraines to the full strength if we feel it necessary... But I don't know if these episodes are migraines or not.  We suspect they are seizures.  

We have an urgent appointment with her paediatrician in 2 weeks time... it can't come soon enough for me!